Experiences of bullying, and difficulties in sleeping, are shared concerns for children with neurodevelopmental conditions and those with congenital heart disease (CHD).
Little is known however about how these challenges affect those children who have both a neurodevelopmental condition and CHD.
This research aims to find out more about their impacts on children with neurodevelopmental conditions (with and without CHD) and their families.
If you are a parent of a child with a neurodevelopmental condition who is 8-15 years old and attending school, please consider taking part in this research, whether or not your child also has CHD.
We will ask you to complete brief questionnaires concerning your child’s experiences of bullying, sleep patterns, and mental health, and a short questionnaire about any strains these issues cause for you.
The questionnaires are available for anonymous online completion via a secure link.
If you would like to know more, please click here or scan the QR code on the flyer, below, to go to our Participant Information Sheet and survey.
If you have any questions or require further information, please contact Ibtisam Waqar or Jayne Spiller at the email addresses below.
About the research team
Dr Jayne Spiller
Jayne is a lecturer within the School of Psychology and Vision Sciences at the University of Leicester. Her research focuses on outcomes for children with genetic conditions (such as Angelman and Smith-Magenis syndromes), and children with autism, with a particular emphasis on the role of sleep.
Email: jkt12@leicester.ac.uk
Ibtisam Waqar
Ibtisam is a medical student at the Leicester Medical School, currently undertaking a Master’s degree course in Medical Research before continuing clinical training. Ibtisam’s research is looking at children’s experiences of bullying and how these may differ between children with and without genetic conditions and congenital heart disease.
Email: iw73@student.le.ac.uk
Dr. Fred Furniss
Fred is an honorary clinical psychology teacher at the University of Leicester, having worked with people with developmental disabilities and their families for over 35 years. His current research is examining the impact of congenital heart disease on outcomes for children with and without a genetic syndrome.